Crow, Fitzpatrick, Sewell, and Calvert Reintroduce Resolution to Make May ALS Awareness Month

May 25, 2021
Press Release

Members Launched Bipartisan ALS Caucus in 2019 to Find Cure for ALS

WASHINGTON - Today, Reps. Jason Crow (D-CO), Brian Fitzpatrick (R-PA), Terri Sewell (D-AL), and Ken Calvert (R-CA) reintroduced a resolution designating May as ALS Awareness Month to raise awareness about the challenges faced by Amyotrophic lateral sclerosis (ALS) patients and their families. Senators Coons (D-DE) and Braun (R-IN) introduced the Senate companion.

ALS is a progressive neurodegenerative disease that affects the body’s motor neurons causing decreased mobility and eventually leads to death. 

“ALS has impacted millions of American families, including veterans, who are twice as likely to suffer from the disease,” said Rep. Jason Crow. “The first step to finding a cure is making sure we raise awareness about the challenges of this disease but also the incredible resiliency and hope ALS patients have shown in the face of adversity. ALS Awareness Month is a time for us to lift up those stories and come together in the fight for a cure.”

"There are approximately 5,000 new ALS diagnoses per year in the United States, each one bringing a new set of challenges for families across the country. These families and their loved ones need our support on the federal level through investments in enhanced research and treatment options,“ said Rep. Brian Fitzpatrick. “Tens of thousands are fighting ALS right now. We must continue to bring awareness to ALS, and this resolution is a small step in doing that.”

“I’m proud to join my colleagues in designating the month of May 2021 as ‘ALS Awareness Month’ to bring attention to the thousands of Americans impacted by this horrible disease. With the continued efforts of scientists, policymakers, and advocates, I’m hopeful that we may continue to discover better treatments and eventually, a cure,” said Rep. Terri Sewell. 

“ALS Awareness Month is an opportunity to renew our commitment to finding cures and treatments for ALS. As a Co-Chair of the House ALS Caucus, I’ve been inspired by the strength and determination of the ALS patients and families I have met. The ALS Caucus remains steadfast in our collective goal of ending this terrible disease,” said Rep. Ken Calvert.

"A majority of Americans still do not know that ALS is always fatal despite the fact that this disease can impact anyone, anywhere. Congressman Crow's leadership is critical in moving us ever closer to accessing ALS treatments and cures and we are so grateful to him for introducing this resolution that will help make sure everyone knows about ALS and our urgent opportunity to put an end to it," said Danielle Carnival, CEO of I AM ALS.

Crow spoke on the House floor last week to urge further investment in ALS research, saying, “Patients typically live 2 to 5 years after diagnosis. It does not have to be this way. I stand today to urge my colleagues to join me, and my fellow members of the ALS Caucus, to rewrite the ALS story.”

Watch his floor speech here

Crow helped form the ALS caucus in 2019 to bring lawmakers from both sides of the aisle to share experiences, exchange ideas, and work collaboratively to find a cure. The ALS Caucus seeks to raise awareness about the challenges faced by ALS patients and their families, think creatively about policy solutions to reduce the negative impacts of ALS, and invest in groundbreaking research to end ALS.

You can find the text of the resolution here.